Anyone that knew Jake would tell you he was
an extraordinary young man.
In 2001 at the age of 17 he was diagnosed with Gorham’s Disease, a rare life
threatening illness.
This was the start of Jake's journey and his courageous
battle.
Jake's family and friends are actively raising money for the Make A
Wish Foundation, a charity that Jake thought extremely highly of.
We are also looking at ways raise funds to aid research in to Gorham's Disease.
Although Jake will
never be forgotten, this website has been designed with the view to
comply with Jake's wishes in getting his story told.
We aim to promote awareness and raise funds for research into this terrible disease, and to become a
support group for suffers and their families alike, through offering factual information and an online-community with Jake's
family and friends.